Ayah Lundt, 14 months old, was diagnosed with spinal muscular atrophy, a rare ge…


Ayah Lundt, 14 months old, was diagnosed with spinal muscular atrophy, a rare genetic disease. Her parents are in a race against time to raise $2 million for a one-time, potentially life-saving treatment before she turns 2. The treatment, called Zolgensma, is referred to as the world’s most expensive drug.⁠

“I think about the cost every day, and it weighs me down,” her mother, Mary Mithika, said through tears before taking a break to compose herself. “And then I look at Ayah and see her getting worse. As a parent, what would you do if you knew there’s something out there that can save your child?”⁠

(📸: Charles Njuguna/@2charles)



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Comment (24)

  1. It’s unethical for life saving drugs to cost that much. If you can’t afford it then u should die? This world is so cruel😢

  2. That’s heart breaking that a drug would even cost that damn much. That pharmaceutical company ought to be a shamed.

  3. I know there’s 2 million people in this world willing and able to give $1 at least. What’s the go fund me?

  4. Holy spirit of God healed The price already paid through the blood of Jesus she is healed claim it Believe it and thank God in advance. The Price of life was paid in full on the cross thank you Jesus ‼️🙌🏾

  5. I hope she gets the drug that will give her the chance to live her life 🙏🏾🙏🏾🙏🏾

  6. I don’t get the USA. Where are all the “Pro-Life-People”? Where do they stop being pro life? As soon as a human being is born? Pay for the medication and let this girl live.

  7. Of course the company that makes the drug is worth GOD knows what and can’t come up with some sort of plan to help this CHILD … where is the gofundme I would like to donate!

  8. Big pharma puts families in this position every. Single. Day. Never once did they care about anything other than money, don’t be fooled

  9. Oh God bless this little girl & her parents with strength & patience till they get the funds together

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